Datathon DUA version #9
Comments
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I think this agreement should include something about not copying the
data onto personal laptops, otherwise para 9 has no meaning --- unless
the datathon database will auto destruct at the end of the datathon!
Roger
…On 4/5/2018 3:38 PM, Jesse Raffa wrote:
I am trying to solidify a version of the DUA which could be used at
datathons. Please see below and let me know if you see any issue with it.
PhysioNet Clinical Database Restricted Data Use Agreement
2018 Sydney Datathon
The contents of restricted-access clinical databases maintained by
PhysioNet were derived from original data that contained protected
health information (PHI), as defined by HIPAA. The providers of the
data have given scrupulous attention to the task of locating and
removing all PHI, so that the remaining data can be considered
de-identified and therefore not subject to the HIPAA Privacy Rule
restrictions on sharing PHI. Nevertheless, because of the richness and
detail of the databases, they will be released only to legitimate
researchers under the terms and conditions described on this page.
If you agree to all of these terms and conditions, access to
restricted information within the PhysioNet Clinical Databases (e.g.,
MIMIC and eICU-CRD) may be granted to you as an individual. Your
colleagues may obtain access to these data as individuals via the same
procedure you are following.
If I am granted access to the PhysioNet Clinical Databases, I agree to
the terms and conditions below:
1. I will not attempt to identify any individual or institution
referenced in PhysioNet restricted data.
2. I will exercise all reasonable and prudent care to avoid
disclosure of the identity of any individual or institution
referenced in PhysioNet restricted data in any publication or
other communication.
3. I will not share access to PhysioNet restricted data with anyone else.
4. I will exercise all reasonable and prudent care to maintain the
physical and electronic security of PhysioNet restricted data.
5. If I find information within PhysioNet restricted data that I
believe might permit identification of any individual or
institution, I will report the location of this information
promptly by email to ***@***.***
***@***.***>, citing the location of the
specific information in question so that it can be investigated
and removed if necessary.
6. I have requested access to PhysioNet restricted data for the sole
purpose of lawful use in scientific research, and I will use my
privilege of access, if it is granted, for this purpose and no other.
7. I will indicate the general purpose for which I intend to use the
database in my application.
8. If I openly disseminate my results, I will also contribute the
code used to produce those results to a repository that is open to
the research community.
9. This agreement will terminate at the end of the datathon. If I
choose to continue to work with the PhysioNet Clinical Databases,
I understand that I must register on PhysioNet and agree to a data
use agreement which includes completing a training program in
human research subject protections and HIPAA regulations, and
submitting proof of having done so.
------------------------------------------------------------------------
My name:
Telephone number, including country/area code (required):
E-mail:
Institution:
Title or position:
Signature:
Date:
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Professor of Health Sciences and Technology
and of Electrical Engineering
Room E25-505
MIT
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Tel 617-253-7818
Fax 617-258-7859
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Does the bolded change work? PhysioNet Clinical Database Restricted Data Use Agreement2018 Sydney DatathonThe contents of restricted-access clinical databases maintained by PhysioNet were derived from original data that contained protected health information (PHI), as defined by HIPAA. The providers of the data have given scrupulous attention to the task of locating and removing all PHI, so that the remaining data can be considered de-identified and therefore not subject to the HIPAA Privacy Rule restrictions on sharing PHI. Nevertheless, because of the richness and detail of the databases, they will be released only to legitimate researchers under the terms and conditions described on this page. If you agree to all of these terms and conditions, access to restricted information within the PhysioNet Clinical Databases (e.g., MIMIC and eICU-CRD) may be granted to you as an individual. Your colleagues may obtain access to these data as individuals via the same procedure you are following. If I am granted access to the PhysioNet Clinical Databases, I agree to the terms and conditions below:
My name: Signature: Date: |
|
Yes, that is good!
Roger
…On 4/5/2018 5:20 PM, Jesse Raffa wrote:
Does the bolded change work?
PhysioNet Clinical Database Restricted Data Use Agreement
2018 Sydney Datathon
The contents of restricted-access clinical databases maintained by
PhysioNet were derived from original data that contained protected
health information (PHI), as defined by HIPAA. The providers of the
data have given scrupulous attention to the task of locating and
removing all PHI, so that the remaining data can be considered
de-identified and therefore not subject to the HIPAA Privacy Rule
restrictions on sharing PHI. Nevertheless, because of the richness and
detail of the databases, they will be released only to legitimate
researchers under the terms and conditions described on this page.
If you agree to all of these terms and conditions, access to
restricted information within the PhysioNet Clinical Databases (e.g.,
MIMIC and eICU-CRD) may be granted to you as an individual. Your
colleagues may obtain access to these data as individuals via the same
procedure you are following.
If I am granted access to the PhysioNet Clinical Databases, I agree to
the terms and conditions below:
1. I will not attempt to identify any individual or institution
referenced in PhysioNet restricted data.
2. I will exercise all reasonable and prudent care to avoid
disclosure of the identity of any individual or institution
referenced in PhysioNet restricted data in any publication or
other communication.
3. I will not share access to PhysioNet restricted data with anyone else.
4. I will exercise all reasonable and prudent care to maintain the
physical and electronic security of PhysioNet restricted data.
5. If I find information within PhysioNet restricted data that I
believe might permit identification of any individual or
institution, I will report the location of this information
promptly by email to ***@***.***
***@***.***>, citing the location of the
specific information in question so that it can be investigated
and removed if necessary.
6. I have requested access to PhysioNet restricted data for the sole
purpose of lawful use in scientific research, and I will use my
privilege of access, if it is granted, for this purpose and no other.
7. I will indicate the general purpose for which I intend to use the
database in my application.
8. If I openly disseminate my results, I will also contribute the
code used to produce those results to a repository that is open to
the research community.
9. This agreement will terminate *and I must delete all PhysioNet
restricted data from my devices or accounts* at the end of the
datathon. If I choose to continue to work with the PhysioNet
Clinical Databases, I understand that I must register on PhysioNet
and agree to a data use agreement which includes completing a
training program in human research subject protections and HIPAA
regulations, and submitting proof of having done so.
------------------------------------------------------------------------
My name:
Telephone number, including country/area code (required):
E-mail:
Institution:
Title or position:
Signature:
Date:
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--
Roger G. Mark, M.D., Ph.D.
Professor of Health Sciences and Technology
and of Electrical Engineering
Room E25-505
MIT
Cambridge, MA 02139
Tel 617-253-7818
Fax 617-258-7859
|
|
This year, the Australians would like to use a common DUA for ANZICS (their database), and the Physionet databases. I am meeting with them next week, and they have proposed for the datathon in June: To me it looks like all the clauses are covered when compared to what we used last year. Please let me know if something is amiss. Also, is the correct PHI reporting e-mail address report@physionet.org or PHI-report@physionet.org ===== This NDA has been developed specifically for the ANZICS Critical Care Datathon held on 22nd and 23rd June 2019 in Brisbane, Australia. The contents of the clinical databases to be made available at the ANZICS Critical Care Datathon have been derived from original data that contained protected health information. The providers of the data have given scrupulous attention to the removal all public health information, so that the remaining data can be considered de-identified. Nevertheless, because of the richness and detail of the databases, they will be released only to legitimate researchers under the terms and conditions described on this page. The term ‘datasets’ below refers to all data provided at the 2019 ANZICS Critical Care Datathon by the following data custodians:
If I am granted access to the datasets provided at The ANZICS Critical Care Datathon, I agree to the following terms:
Name: ==== |
|
the correct email is |
I am trying to solidify a version of the DUA which could be used at datathons. Please see below and let me know if you see any issue with it.
PhysioNet Clinical Database Restricted Data Use Agreement
2018 Sydney Datathon
The contents of restricted-access clinical databases maintained by PhysioNet were derived from original data that contained protected health information (PHI), as defined by HIPAA. The providers of the data have given scrupulous attention to the task of locating and removing all PHI, so that the remaining data can be considered de-identified and therefore not subject to the HIPAA Privacy Rule restrictions on sharing PHI. Nevertheless, because of the richness and detail of the databases, they will be released only to legitimate researchers under the terms and conditions described on this page.
If you agree to all of these terms and conditions, access to restricted information within the PhysioNet Clinical Databases (e.g., MIMIC and eICU-CRD) may be granted to you as an individual. Your colleagues may obtain access to these data as individuals via the same procedure you are following.
If I am granted access to the PhysioNet Clinical Databases, I agree to the terms and conditions below:
My name:
Telephone number, including country/area code (required):
E-mail:
Institution:
Title or position:
Signature:
Date:
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